Happy Birthday! Megan has made so many strides this past month. It's so fun to see her so lively. We're so glad to have her part of our family and that she's feeling better.
I love how they're holding hands.
And as it continues Megan IS sick again. She has a cold and cough. Sometimes she coughs so hard she vomits. It's fine. I'm use to it. Sometimes she eats too much and pukes. I'm use to that too. She even will gag on her food and vomit. That is just how life is.
I'm very sleep deprived and wonder how moms of chronically ill children do this year after year. One of my students (way back when) had restricted lung capacity. This made it very difficult for him to breathe but particularly difficult at night. For years she and her husband took turns sleeping next to their son to help him during those nights. Or another mom whose son I also worked with had severe but high functioning autism and he had bi-polar disorder. He had the most severe behavior of any student I had ever worked with. Due to his bi-polar disorder he would also not sleep for days. His mom put all of her life aside to take care of her son. She rarely gets a break from him because no one can handle him like she can. Amazing. How do they do it?
Today is the first day this week (Friday, May 14th) Megan has not insisted I hold her all day long. It drove me crazy not to have a break from her. Even when Mark would come home she didn't want her daddy, just her mommy.